Saturday, February 11, 2012 3:26am EST
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Black America's response to the AIDS crisis is finally gaining momentum. More Black people than ever before know someone with HIV/AIDS and/or are talking about it.
In light of this progress, it is tempting to think that the AIDS epidemic in our community is under control. But this is no time to be complacent. Black people are still being diagnosed, progressing to AIDS and dying from the disease more often than any other racial group in America.
To be fair, the progress we've made against AIDS is remarkable. High-profile community members ranging from Oprah to Obama have taken HIV tests in front of the television cameras in a bid to encourage other Black Americans to get tested. And just last month, many of our community leaders came together with the Centers for Disease Control in Atlanta to plan the next phase of the "Heightened National Response to the HIV Crisis among African Americans," which is spawning innovative HIV prevention campaigns across the United States.
This is exactly what's needed - we need to take responsibility for the health of our community. And in some ways, all this increased public education is beginning to pay off. In a recent survey, Black people were the only ethnic group to say that HIV is the number one health problem in America.
So why do I still say, "AIDS in America today is a Black disease?" The truth is, while awareness - and lip service - about this disease may be rising, too many of us still don't know our HIV status, aren't in appropriate care and treatment, and aren't taking concrete steps to protect ourselves and our loved ones from becoming infected. When it comes to this disease, we've got to walk the talk.
The facts remain startling. Over 50 percent of HIV-positive African Americans do not know they are HIV positive. Today, June 27, is National HIV Testing Day. Testing has never been easier -- it's free, painless and quick. And you can even get the results back in less than an hour. The least we can do is to find out our status.
For those who do get tested, it is often too late: Too late for treatment to be fully effective, too late to stop the progression from HIV to AIDS and too late to prevent significantly more AIDS-related deaths in our communities.
And there is a cruel irony here: Many of our people are dying just as HIV treatment reaches new heights. Today's medications mean HIV can be successfully treated over the long term with just 1 or 2 pills a day. This is amazing progress compared to just a decade ago, when treatment was difficult to take and involved lots of pills. But because we're not getting tested for HIV early and often, many of our brothers and sisters are missing out on these advances.
Behind all of this is the ongoing challenge of HIV stigma. Too many people are still too scared to take the test for fear of how others may react to a positive diagnosis. And too many people are discouraged by damaging misinformation and myths in our community about HIV. But times have changed. Today, the stigma Black America really needs to be concerned about is the shame of not getting tested, and thereby not doing what it takes to end the AIDS epidemic in our communities. It is time for each one of us to take responsibility for the health - and the future - of our community.
I am one of a growing army of Black folks who are determined to safeguard our future. For now, AIDS is a Black disease. But when we have a clear plan, with specific goals and objectives, we do overcome. We learned that with the civil rights movement in the 1960s. And I can assure you, we will learn that as we work to end the AIDS epidemic in Black America.
In fact, at the Black AIDS Institute, we already have a plan to stop AIDS. Our "Test One Million" campaign will:
- Reduce HIV rates in Black America,
- Dramatically increase the number of Black people who know their HIV status,
- Build an army of Black testing and treatment advocates,
- Increase the number of Black people seeking early treatment and care, and
- Decrease HIV stigma in Black communities.
Black America can win the battle against HIV/AIDS. But it's going to take all of us to play our part - and be part of the solution. We need regular HIV testing for all Black people, access to early treatment for those of us who test positive, and education to combat the misinformation and stigma that surrounds HIV.
Yes, Black people are finally talking about HIV/AIDS. And now it's time to turn words into action. Take control. Talk to your family and loved ones about HIV and get tested at least once a year.
Phill Wilson is the founder and chief executive officer of the Black AIDS Institute.
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2008-06-27 16:44:28
2008-06-27 18:24:50
Before I had my 1st hiv test back in the mid 90's, because of wide spread speculation and fear about gays, HIV, coupled with deep morality issues about being sexually active, I just KNEW I was positive despite the fact that I hadn't engaged in "high risk" sexual behavior or much of any sex at all.
It became a type of hypochondria for me through high school. I'd be having a good day and suddenly it would hit me "don't get too happy...you probably got aids" then eventually "just accept you got aids". Plus there was nowhere around to get tested in private in my area so the person who did your testing probably was your neighbors cousin n shyt. There was nobody to talk to about it. Looking back Im amazed at how much terror it caused that kept me from pursing many goals.
Back in the early 90's there seemed to be a potent media campaign on HIV awareness that deputized the general public into judging and condemning gay people to a death sentences so if you were a black teen coming out ther was an adding layer of shame/guilt/confusion to overcome. The schools woudn't acknowledge gay students existed.. all you'd get was that "Some of you will die from Aids" video in health class.
Only through connecting online with other black gay people many years later did I learn of others with similar emotional responses to the war on HIV. It was all inner dialogue as many went through our formative years in near perfect isolation.
The way society handled these HIV Awarness messages didnt just create a barrier of fear about being sexually active but ironically had you already been sexually active during this time, it would serve to lock at least some young gay youth into a prolonged panic that would increase the time it would take them to get their 1st HIV test which was the case for me.
After about 2 years of living in tremendous stress and fear, it turned out that I didn't have HIV and I recall that nurse holding back laughter when she realized how terrorized I was about the results which made me realize most other people probably didn't think much about HIV in that way.
Last week I saw a commercial where a young black girl decides to go with her friend to the clinic for morally support which is a great message and no doubt would make the ordeal less frightening. Its important for young people not to have to go through those times in isolation from others in similar situations.
2008-06-29 00:14:25
Do you know in 2007 Africa has 12 million AIDS orphans? More than double that number of black adults have died of AIDS. This is just in Africa.
I must create controversy in keeping my nature.
Our American Indian traditions teach us to be fearless and to not display fear. We are taught to be fearless but not taught to be foolish.
I have difficulties understanding this fear of being tested for HIV/AIDS.
A couple of months back, I underwent a colonoscopy to scan for colon cancer. I do not want to die of a preventable or curable disease; I love being alive and relatively healthy. I elected to undergo this colonscopy without benefit of narcotic pain killers nor tranqulizers. I discovered, out of thousands of patients, I am only one of two people who endured a colonoscopy without pain killers. The other person is a woman, like me. I endured this pain and endured knowledge results might be positive for colon cancer to reaffirm I am a traditional American Indian.
We Indians, traditional Indians, are taught to endure pain and to not display pain. I did so. Although I experienced extreme pain for about a half an hour, I never gave in, I never flinched. During this procedure I watched the testing on a television, engaged in conversation with nurses, my doctor and others, even cracked some jokes along with talking politics. I walked in with pride and I walked out with pride; no recovery, no wheelchair. I learned I am free of colon cancer.
How painful can a blood test be? This is nothing, less than a bee sting. How painful can this be to learn you are free of HIV or have HIV? Either you do not have colon cancer or you do, either you do not have HIV or you do. This is a simple matter-of-fact part of life. What is there to fear? Strikes me not knowing is most fearful.
I am a woman. I endured extreme pain with class and dignity. Why cannot you, man or woman, be as brave? I am fearless. Can you, the reader, claim the same?
I suppose this is a cultural difference, this your being fearful and our not being fearful.
Changing topics, I am dismayed black Americans are not addressing how HIV/AIDS is spread. Wilson is most correct in urging testing for this often fatal disease. His words and actions are commendable, are a display of courage.
This disease is spread by sex, yes? Almost always this HIV/AIDS is spread by multiple sex partners and most certainly by unsafe sex. There is no risk for contracting sexually transmitted diseases for monogamous couples, right? What does this suggest about Black America?
Is taking responsibility for sexual activities also too painful? Is this a cultural mores problem? Rampant HIV/AIDS within the black community is direct evidence of sexual irresponsibility.
Twelve-million AIDS orphans in Africa, alone. Is this what being black is all about, leaving behind orphans because you cannot keep your pants on?
If black Americans do not take action to stop this epidemic of HIV/AIDs within your culture, you are going to die and your culture might become virtually extinct. You folks most certainly need to man-up as Phill Wilson has.
Okpulot Taha
Choctaw Nation
2008-07-01 21:31:28
2008-07-01 21:46:46
The message. To discuss this very serious issue is to acknowledge problems in the black community. This causes personal discomfort.
Rather surprising to me. This is truly an issue of life or death. This truly is an issue which directly effects all black Americans, but none are brave enough to discuss this issue, save for a few like Phill Wilson and his fellow activists.
Life or death. I would think this would scare the living daylights out of people.
Perhaps the many believe this will not happen to them.
Okpulot Taha
Choctaw Nation
2008-07-02 16:52:03
2008-07-04 02:07:14
Well kissing Phill's ass and then going off into bizarre stories about having parts of your ass cut into w/o the benefit of painkillers probably turned many readers off from commenting out of pure respect for Phill's overall message but that's just my take.
2008-07-04 15:46:05
Your display of ignorance of a colonoscopy procedure is evidence you are at higher risk of dying of colon cancer. This is a mistake on your part. A bit of knowledge, a bit of learning, will have you living longer and living more healthy.
Same is true for Wilson's comments on HIV/AIDS. Learning how to prevent disease, learning of early treatment of disease, is a life saver.
Be sure, ignorance will not save your life.
Okpulot Taha
Choctaw Nation
2008-07-04 22:15:46
No, the point is nobody cares to hear about Purl Gurl's gizzards, chitlins n shyt on a topic about HIV/AIDS! Shame on you for attempting to trivialize the issue. Your attempts to control how other people express themselves by suggesting "we go learn sumptin" is ineffective and total BS. We all see right through it. I encourage you to stay and remain an active participant it seems to do something for you and I hope that's positive. And who knows, maybe one day you'll grow out of being a Jerk and become a real Person.
I REFUSE TO READ ANYTHING MORE FROM THIS CLINGY "PURL GURL" CHARACTER.
2008-07-07 01:19:13
For a woman who do not like us because the Democratic Nominee happens to be Bi-racial
She sure claims to know alot about us, More than we do
Go Figure
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